A matter of health… Two years later

Some of you may remember that on May 9, 2016 I was diagnosed with non alcholic fatty liver disease, and told that if I didn’t get it under control I would need a new liver. I am THILLED to announce that it is under control! I just got back from the doctor and my liver numbers all came back normal… like not even high in the normal range… utterly and completely NORMAL. It took me about two years of maintaining a very strict low fat diet where I was essentially trying to irradicate it from my diet entirely (except for fat from things like fish, nuts, or small servings of avacado & dairy). Not only that but having been pre-diabetic now for about 20 years, where my sugar was high, but I managed to keep it just low enough as to not necessitate insuline or meds (I was adament that I be allowed to try to control it with diet), my blood sugar has ALSO tested completley normal (I’m convinced there’s a connection).

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This is my chart from back on Sept. 1, 2016, about 6 months after then initial diagnosis, when I convinced the doctors that I could do it without medications

For those who don’t remember…. Back in May of 2016 I swung through Chicago for my yearly checkup, weighed in at 185 lb (instead of 130, which is where I should have been), and was informed that not only were my sugar and cholesterol shooting up, but I had developed fatty liver disease; and, if I didn’t do something, and do it quick, I was going to need a new liver. YOUCH!!! She said I had to make an appointment with a liver specialist ASAP, and I had to change my diet immediately, to as low fat as possible. Mostly fish, a little chicken, no beef at all, and as low fat as possible, so I could NOT eat at restaurants anymore.

However, I was only in town for two weeks, not enough time to even book an appointment with the specialist, had already paid for lodgings in Canada for June through August, and I knew I would not be back in Chicago until the beginning of September, when an old friend was getting married.

[Note: This, my dear reader is why pretty much every meal after May 2016 consisted of fish, and something low fat and full of fiber on the side. NOT eating at restaurants wasn’t going to fly, so I had to come up with some pretty fierce protocols to makes sure that didn’t harm me. I know this sounds extreme but,…. I start every order with the explanation: “this is not about me wanting to loose a few pounds, this is about me having liver disease and if I am not VERY VERY careful needing to try to try find a new liver and get a transplant. So, unless you want to quite literally poison me, unless you want to be partially responsible for my death, you need to listen very carefully.” … it seems to work.]

It’s also why I had scheduled, as I promised my doctor that I would, two full months in Chicago in September/October of 2016…. In mid October I went to the liver specialist, and was greeted with GOOD NEWS!!! Instead of 185 lb, I was 150 lb…  35 lb lost in five months….  and as the above chart showed, all my bad liver numbers had dropped.

Then they did a liver scan and he said there was no evidence of any scarring of the liver, i.e., cirrhosis. That he was very hopeful and happy (and how nice it was to have a patient who actually did what the doctor said to do). I was instructed to keep doing what I’m doing in terms of my low fat diet and exercise, till the liver number have come all the way down, but that he didn’t want to see me for two years, at which point he’d want to run tests again.

It is now TWO years later, and while I admit my careful eating, which involved careful ordering and ripping the heads off of restaurant staff that brought me anything oily was not always consistent, it’s been what was necessary to continue the downward movement of the really important numbers!

That said, I’ve actually managed to do it while STILL putting on a lot of weight over the course of the last year…. I had dropped down to a very happy 135 lb for a while, but in the last year I sadly have climbed back up to around 157 lb again…

That said, as I’m writing this I just realized my GP has to write me a referral so that I can make an appointment to see the liver doctor again this coming October/November (like he asked for)… and she forgot to do it… going to call her now.

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